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REMOVE OUTDATED IDSA GUIDELINES FROM NGC!
Treatment guidelines are tremendously important in determining your medical treatment options. All important treatment guidelines are listed by the National Guidelines Clearinghouse (NGC). NGC requires that guidelines be updated every 5 years.
The IDSA has not revised its guidelines for more than 5 years. Nevertheless, the NGC recently permitted them to continue listing the guidelines – without updating them – based on the IDSA’s claim that the antitrust review process fulfilled NGC review requirements.
Sign the petition to urge:
- The NGC to remove the guidelines as its listing rules require.
- The IDSA to revise its guidelines in a transparent process that includes both patient advocacy representatives and physicians who treat chronic Lyme disease.
Don’t bother. The NGC has decided to keep the guidelines posted as is. Try again in 2015.
Now isn't that just too bad. Looks like even the "game breaker" by Embers et al. wasn't enough to pull off this scam.
ReplyDeletePlease explain how the ELISA test can have a 50% false negative result (as quoted by a CDC representative at a Virginia Lyme Disease Task Force meeting). Please explain why the IDSA guidelines are inadequate and why. Please explain why IDSA members cannot accept dissemination of disease (through either misdiagnosis or late diagnosis) as the reason why a recommended treatment of 28 days is inadequate. Will this comment make it to your blog? Doubtful.
ReplyDeleteIf someone from the CDC said current diagnostic methods miss 50% of cases they were likely referring to the very early stages of infection. It takes a week or two to mount a significant antibody response to infection: one that is detectable with current methodologies. I’m not aware of the IDSA guidelines being “inadequate.” Disseminated infections are quite common and regularly (and successfully) treated. One of my relatives had such a case with multi EM rashes and was treated with $8 worth of doxycycline.
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